Post by Danielle on Jun 21, 2009 16:01:00 GMT -5
Today I will speak about my experiences with birth defects and a live birth with multiple birth defects. Once again these experiences are my own and I can't speak for anyone else. In November of 93 I had an OBE and it left me with a very clear memory. I was taken during the night and felt I was traveling at very high speed away from earth and I felt the pain and density of earth living me. I felt light and very much One with God or the Source of all that is. I met with a being of light and felt Love beyond anything I ever experienced. I remember not wanting to go back but had too. The communication was telepathic and I was sent back despite my protests. I was sucked back into my body and left with a sense of wonder and Love that profoundly changed me for the better. Anyway that month I also got pregnant and was very excited at the prospect of a new baby and a new life entering mine. I already had a 4 years old daughter,very smart and very healthy. I went to the doctor about 3 weeks in my pregnancy because I was bleeding and not feeling right. My OBY told me then after doing a sonogram that the baby did not look right, something was wrong and did some blood tests. Over the next few weeks I agonized over the prospects of something being wrong with the baby. In December blood tests came back with a protein discrepancy but noting concrete yet. Then we did an amniocentesis at 16 weeks and waited weeks for results. During that time I felt very sick and could not eat normal food. Nothing but lentil soup. The thought of food just sickened me. I worked and would come home and be bedridden the whole pregnancy. I remembered having a very vivid dream and seeing the baby sitting on the sofa with my daughter and he did not look right. Big Head really hideous really. Results came back and it was disastrous news. Trisomy was the diagnostic plus congenital deformities. The baby Had an additional chromosome # 7.There was no chance for a life birth and was told to abort asap. So heartsick over it I did in April 1994. The doctor told me that the baby looked terrible and I did the right thing. Eventually I recovered and in August of 94 I got pregnant again, and once again from the beginning I knew something was wrong. Well to make a long story short this baby was born, a male after 2 inutero surgeries and twelve more since. He has Prune belly syndrome of which I had never heard of before. I dreamed about something wrong two weeks in my pregnancy. Tests were done earlier and he was diagnosed with PBS at less then 10 weeks of gestation. is chromosomes are normal as far as they can tell. It is a very rare disease that affects the kidneys, the lungs, the bladder, urethra, ureters and the reproductive organs. the belly button is under the lungs and the lungs are underdeveloped and in a pigeon chest (pointy)The babies with PBS have no abdominal muscles and their skin is white and thin, almost transparent. They have a huge belly and it looks like a prune. They have a huge forehead and a narrow chin. They are very blond almost white hair. When I saw my baby 4 days after his birth I thought they brought me to the wrong incubator and told them to give me the right baby! traumatic to say the least. He was born wrapped up in the umbilical cord and has huge scars on his legs ( still visible to this date) he is 14 now and had 12 surgeries so far. He is a learning disabled but wise beyond his years. he can relate to anyone and unless you looked at his scared body you would not know what he went through. I call him my alien baby. This is my story. I love my kid but i wonder where he came from. It has been a long road so far. For years when he would get upset with his disabilities he would always say to me that he wanted to go Home. That always made me very sad. I have enclosed a photo because this kid is special!